Stakeholder engagement process in priority setting for trials methodology research and Cochrane Reviews

Workshop category: 

  • Priority setting
Date and Location

Date: 

Monday 17 September 2018 - 14:00 to 15:30

Location: 

Lennox 1
Contact persons and facilitators

Contact person:

Patricia Healy

Facilitators:

Healy P1, Bhaumik S2, Sharma T3, Nasser M4, Whiting C5
1 National University of Ireland, Galway, Ireland
2 The George Institute for Global Health, India
3 , Denmark
4 Peninsula Dental School, University of Plymouth, United Kingdom
5 James Lind Alliance/NIHR, United Kingdom

Acknowledgements:

Working Group P1
1 PrioRiTy Study, Ireland/UK
Target audience

Target audience: 

Anybody who is trying to identify ways to set collaborative priorities for research (authors, consumers, researchers, methodologists, trial designers, clinicians)

Level of difficulty: 

Basic
Type of workshop

Type of workshop : 

Discussion
Abstract

Abstract:

Background: Efforts continue to identify substantive ways of incorporating stakeholder engagement into every phase of the research process. Empirical evidence in setting research priorities is increasingly demonstrating that the degree of stakeholder involvement can affect the process and outcomes of priority setting endeavours for research.
Currently, all Cochrane Review Groups are required to set priorities for topics for reviews, and are increasingly using more comprehensive processes to set priorities for their work. However, often it is not clear who is involved in the priority setting and the degree of their involvement in each step.
This workshop will explore the priority setting experience of both the James Lind Alliance (JLA) and the Cochrane Priority Setting Methods Group with a focus on stakeholder engagement and related issues.

Objectives: a) to provide an overview of the existing approaches for stakeholder engagement during research priority setting b) to demonstrate the JLA approach to setting priorities for treatment and research, and c) to reflect critically on the stakeholder engagement process during priority setting.

Description: The session will start with an overview of the existing approaches for setting priorities for research. This will be followed by a presentation by JLA on how Priority Setting Partnerships (PSP) identify and agree unanswered questions that matter to patients and clinicians by consensus, and how this method was modified in a novel way in the PRioRiTy study which identified priorities for methodological research in trial recruitment. The PRioRiTy team will describe how they used a modified PSP to enable a comprehensive, rigorous and inclusive priority setting process for research methodology with participation from key stakeholders, including members of the public. The final part of the session will be an interactive learning exercise in which participants will be divided into groups to reflect and report back on stakeholder selection and engagement processes based on examples of research priority setting exercises that will be provided during the workshop.

Relevance to patients and consumers: 

There is some evidence of mismatch between what patients, the public, health professionals and researchers want to see researched, and the research that is actually being conducted. It is recognised that patients, the public and the clinicians who attend to them, are able to, and should, make contributions to shape research agendas so that the interests of all parties can be represented. Our workshop will focus on novel approaches for involving patients and healthcare consumers in setting priorities for research. We will present some practical, pragmatic, good practice examples of research initiatives with fully engaged public involvement.