Meeting the challenge of research empowerment through co-production and expert patient review

Workshop category: 

  • Other topics
Date and Location

Date: 

Sunday 16 September 2018 - 14:00 to 15:30

Location: 

Kilsyth
Contact persons and facilitators

Contact person:

Amy Price

Facilitators:

Price A1, De Iongh A2, Cartwright E3
1 University of Oxford and The BMJ, USA
2 BMJ, United Kingdom
3 Rosamund Snow Prize Winner, United Kingdom

Acknowledgements:

Schroter S1, Richards T2
1 The BMJ, UK
2 The BMJ (Patient Partnership Initiative), UK
Target audience

Target audience: 

review authors, consumers, publishers, clinicians or researchers with an interest in patient review and research co-production particular area of interest

Level of difficulty: 

Intermediate
Type of workshop

Type of workshop : 

Training
Abstract

Abstract:

Background:
To provide value, research must be ethical, methodologically sound, sustainable, relevant to patients, clinically safe and lead to real-world evidence-based practice. Health researchers seek practical advice on how to integrate patients and members of the public as research partners irrespective of the size or design of the study. Patients need practical guidance on how to comment on research under peer review. This workshop will be enriched by what was learned from encouraging researchers to describe how they involve patients and the public in research and from surveying patient reviewers, authors and editors. This is a 'how to' workshop for combining patient and public research involvement with evidence-based practice from protocol development to patient review.

Objectives:
To provide workshop participants with take-home skills and practical tips for:

- effectively involving patients in research;
- delivering expert patient review;
- writing the public involvement declaration in a manuscript.

Description:
Training will be interactive and include hands-on practice with problem-solving components and practical solutions for research involvement.

Workshop participants will learn how to write a meaningful review, how to address expert patient reviewer comments and what to include in a research public involvement statement.

Researchers and patients will work together in small groups to document patient involvement in a research study protocol using a real-world example, collaborate on writing an expert patient review, address the reviewer comments and co-produce a public involvement declaration.

For each objective small groups will be invited to reflect on:

- potential actions;
- questions;
- happy moments;
- pain points;
- design enhancements for problem-solving.

***Handouts of resources will be provided to support putting skills into active practice***.

We gratefully acknowledge the BMJ Patient Reviewers and the BMJ Patient Panel for their excellent leadership and feedback in the building of this workshop.

Relevance to patients and consumers: 

Patients/public/consumers were full partners in the research team. They were involved in the design of this study by choosing, prioritizing, designing, refining and authoring the research that guides this workshop and in the workshop planning and design. They were also full authors on the posters, presentations, and research papers leading up to this workshop. The relevance to patients, clinicians and researchers was determined by their priorities and refined by their feedback.