Who gets to define the impact of research - a patient centric approach

This session will follow on from Mark Taylor's keynote talk 'Research Impact Assessment - from practitioner to patient'.

To reduce the possibility that health research impact assessment is a closed loop conversation between funder and fundee we need to understand and hear the patient voice and their view on how research may affect their treatment pathway / health and social care experience. The session will build on the early talk on why this important and work with attendees on what models may be relevant and helpful (and when) including the possible use of Citizen Juries and adapting patient reported outcome measures for impact (PRIMS not PROMS; Patient Reported Outcome Measures). This session will be open and explorative in nature and we hope to be bale to better define ways forward and a call for action afterwards.

Mark currently works part time as Head of Impact for the Central Commissioning Facility of the National Institute for Health Research. Before that he has worked, amongst other places, for Oxford University Hospitals NHS Trust, the NHS Institute for Innovation and Improvement and Oxford University Innovation (the University's knowledge transfer arm). His work at the moment includes looking at ways to incorporate the patient experience into the evaluation of clinical and health research impact. Mark is also part of the British Medical Journal's Patient Panel. He has been a trustee for the MS Society and briefly for Asthma UK and was diagnosed with relapsing remitting multiple sclerosis in 2004.  He has just been made Parkrun's Ambassador to the MS community and is an Academic Visitor at the Radcliffe Department of Medicine in Oxford.

Facilitators:

Taylor M1, Kamenetzky A2
1 National Institute for Health Research, United Kingdom
2 KCL Policy Institute & NIHR Central Commissioning Facility, United Kingdom

Target audience: 

This session will be of interest to anyone who enjoyed the keynote talk: 'Research Impact Assessment - from practitioner to patient'

Type of session: 

This will be an interactive session.

Date: 

Tuesday 18 September 2018 - 11:00 to 12:30

Location: 

Sidlaw Auditorium

Plenary: 

Keynote 3. Working together: from theory to practise