Fostering patients' involvement in patient-directed evidence communication

Workshop category: 

  • Knowledge translation and communicating evidence
Date and Location

Date: 

Sunday 16 September 2018 - 16:00 to 17:30

Location: 

Contact persons and facilitators

Contact person:

Facilitators:

Craigie S1, Iorio A1, Agoritsas T2
1 McMaster University, Canada
2 University Hospitals of Geneva, Switzerland
Target audience

Target audience: 

Patients and Consumers

Level of difficulty: 

Basic
Type of workshop

Type of workshop : 

Discussion
Abstract

Abstract:

Background:
PAIN+ CPN and CLOT+ are publicly funded, patient-centred knowledge translation initiatives developed by the Health Information Research Unit (HIRU) at McMaster University, through which patients, consumers and health care providers get access to continuously updated, high-quality, clinically relevant and newsworthy evidence on the topics of chronic pain and thromboembolism, respectively (www.painpluscpn.ca, plus.mcmaster.ca/clotplus). HIRU also supports Medical Cannabis Plus (plus.mcmaster.ca/MedicinalCannabisPlus/) and the Optimal Aging Portal (www.mcmasteroptimalaging.org), both projects mostly targeting the lay public.

Objectives:
1) To review the format of evidence summaries and the process of selecting abstracts with health care consumers and to exchange ideas and experience with others who are active in the field of patient communication, including those who produce Cochrane lay summaries.
2) To share our technology, which is available for re-use.

Description:
The workshop will begin with an interactive presentation introducing participants to the PLUS interface using CLOT+ and PAIN+ CPN as examples, with an overview of their features and a detailed description of the public jury system (20 minutes).

A discussion will follow of the results of a recently performed personal scenario analysis involving 18 senior citizens in Canada and how this elicited the various ways that different patients and consumers choose to look for health information (20 minutes).

Participants will then break into groups to review and provide a structured critique of current and alternative formats of lay summaries, with guidance from the facilitators (30 minutes).

The results of the critiques will be discussed in the larger group to wrap up the session (20 minutes).

Attachments

Relevance to patients and consumers: 

Over the last 5 years we have actively involved patients in producing lay summaries of research results. This workshop is poised to present and reflect on what we have done and learned by working with patients, other consumers, and researchers, with focus on value and challenges in engaging patients to participate in the process of creating lay summaries, and in optimizing summaries for the patient audience. We expect to contribute practical guidance to the general body of knowledge on patient involvement in communicating research results and to establish network interactions to reciprocally support more effective communication to patients.